National Meningitis Association
The National Meningitis Association (NMA) is a nonprofit organization founded by parents whose children have died or live with permanent disabilities from meningococcal disease.
NMA’s mission is to educate families, medical professionals and others about bacterial meningitis and prevention approaches to the disease
In particular, NMA is focused on increasing awareness of the dangers of meningococcal disease among adolescents and young adults, who are at increased risk for the disease. Many of whom can be protected through education and vaccination efforts.
Educational Programs and Resource Materials
NMA is committed to educating the public about meningococcal disease and has developed a variety of educational programs and resources to inform local communities about the risks of the disease among adolescents and young adults and available prevention methods.
Candie Benn, a Founding Director
Lynn Bozof, Founding Member and Executive Director
Lynn’s son, Evan, was a junior at Georgia Southwestern University when he contracted meningococcal disease. After a 26-day battle with meningococcal disease and meningococcemia, and amputation of both arms and legs, Evan died from the disease. Unfortunately, Lynn was unaware that adolescents and young adults are at increased risk for contracting this deadly disease or that it was potentially vaccine-preventable.
Getting it: A Disease…A Vaccine
NMA recently developed an educational video called “Getting It: A Disease…A Vaccine”, which is narrated by actress Glenn Close and designed to educate parents and school communities about the risks of meningococcal disease for adolescents and young adults and the importance of prevention. The video features families and individuals personally affected by meningococcal disease discussing how the disease has impacted their lives.
To accompany the video, NMA developed a corresponding resource guide, which includes suggested lesson plans and materials for parents and students, designed to help educators utilize the video within the classroom and initiate discussions on the disease.
The Brendan Hession Foundation Scholarship: Meningitis Survivor Educational Assistance Award
The award is given in memory of Brendan Hession, who died on March 17, 1997 of bacterial meningitis. He was seventeen. Brendan loved learning and was a gifted student. At the time of his death, he had qualified as a National Merit semi-finalist.
Meningitis prevented Brendan from reaching his educational goals. But–in his memory—Brendan’s family and friends seek to assist those that have suffered and survived this terrible disease in achieving their dreams.
Important disclaimer: The information on pkids.org is for educational purposes only and should not be considered to be medical advice. It is not meant to replace the advice of the physician who cares for your child. All medical advice and information should be considered to be incomplete without a physical exam, which is not possible without a visit to your doctor.
Information is the power
parents have over disease.